Moi ?!
[IMAGE: https://cdn.steemitimages.com/DQme1kDmoWmS8zkQZEKEqdWWYEspyLxb35J4mJx3K61Vizy/54463127_403133433803846_8621616353834434560_n.jpg]
Laurose , Laure, la femme Flamande-rose (qui vient du pays des frites et de la bière ! Ou du moins à la frontière côté France!)
[IMAGE: https://cdn.steemitimages.com/DQmVxL1vmng8gVc3hypwCGGCeNevMGkeoupP7TDR6nmsXpL/5c8cd95c74456493712259%20(1).gif] ~> Pourquoi cet animal totem ?
J’ai les mêmes genoux en arrière ! Si si c'est possible... C’est moche de base. Ouais... C’est dû à une maladie qui inclut une hyper-laxité des ligaments, et touche le collagène en général : le Syndrome d’Elhers-Danlos (ou SED en abrégé). C’est hyper douloureux dans tout le corps et handicapant. J’expliquerai dans de futurs posts.
J’avoue c’est glauque. A l’école j’étais sujette à moquerie. J’ai eu pas mal de déboire…
Aujourd’hui j’ai décidé d’en faire ma force !
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Du vilain petit canard, qui n’était pas non plus un cygne,
j’ai fini par me trouver ! Après des années de lutte et d’acharnement j’ai prouvé que j’étais bien malade et non folle à lier comme les médecins le suggéraient ! (Quoique... On peut cumuler ?)
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J’ai tiré pas mal de leçon dans la vie (Ne te marie jamais tu finiras par divorcer par exemple. Il faut toujours écouter sa maman…). Je suis donc ici pour faire partager mon expérience en tant qu’handicapée qui s’assume, le tout avec légèreté. Et puis au passage si je pouvais aider au moins une personne, même depuis mon lit où je passe beaucoup de temps, ce serait formidable !
N’hésitez-pas à m’interpeller en commentaire ou en privé sur Discord ( @L'OrRose#3243 ), j’adore échanger !
La porte de mon blog est ouverte, le café est chaud, installe-toi et fais comme chez toi !
Combien de sucre ?
[IMAGE: https://cdn.steemitimages.com/DQmaxX3KTXYHmwbp2mrjP8gM7DcJmY8fuQjNNXCtCQvxNHn/5c8ce43d84e62533963600.gif]
@amico | March 16, 2019, 12:14 p.m. | Votes: 0 | [
VOTE ]
Benvenuta @laurose, ti seguo con interesse!
Amo le persone che sorridono e tu, nonostante le tue vicissitudini, hai un bellissimo sorriso: compliment!
Un caro abbraccio
@amico 🤗
Ps: scopri il piacere di usare https://bit.ly/PARTIKO installandolo sul tuo smartphone, per ottenere numerosi vantaggi!
@janne | March 16, 2019, 12:35 p.m. | Votes: 0 | [
VOTE ]
Welcome to Steemit laurose. The official FAQ can be found here and has A LOT of information https://steemit.com/faq.html - Also remember, Steemit is just ONE of the sites built that uses Steem the blockchain. You should also check out DTube and DSound for starters and if you're a gamer, Steem Monsters! There are many other cool apps but I can't list them all here, there's just too many! But I'd also like to mention Steempeak, it's a better blogging platform that has a lot of cool features. Welcome to the blockchain! :) Oh, and if you're interested in creating your own tokens or smart contracts, check Steem engine!
Welcome to Steem laurose! Partiko is officially the fastest and most popular mobile app for Steem. Unlike other Steem apps, we take 0% cut of your earnings! You can also be rewarded with Partiko Points while using Partiko and exchange Partiko Points for upvotes!
Partiko for Android can be downloaded here on Google Play and the iOS version is available here on the App Store.
If you have more questions, feel free to join our Discord channel and ask @crypto.talk, we're always here to help!
Thank you so much for your interest!
Bienvenue a steemit
Hello laurose
You are a Steemian now! And your first blog is online. Better late than never, and I'm sure one day we will say those were the very early days of Steemit, so congrats! Whats essential here is regular posting off good quality blogs.
So start writing ! Tell us about your life, passion, animals or your work.
That Will attract possible followers.
Do be carefull with your passwords, they are yours and yours only.
Look up the free Steemify app in the Appstore or read this blog https://steemit.com/busy/@exyle/using-steemify-to-stay-up-to-date-about-the-blockchain-like-project-destiny-please-consider-blockbrothers-for-your-witness-vote Thats helpfull too.
Next to Steemify I use Appics and Partiko to post.
You can also visit our discord server The Steem Terminal is your one-stop location for learning about destinations on the Steem Blockchain & Discord. Here you will find people who are willing to answer the questions you may have as a new Steemian, documents to assist you, a place to learn and practice, and find out about the many opportunities to connect with other Steemians! Or the account @heyhaveyamet ( a coop with @xcountytravelers ) Where we highlight newcomers.
Hope this helps for now. Good luck, and Full Steem Ahead! Let me know if you have questions,
Love from the Netherlands
Britt
Congratulations @laurose! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
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To support your work, I also upvoted your post!
Do not miss the last post from @steemitboard:
Are you a DrugWars early adopter? Benvenuto in famiglia!
@anhvu | March 17, 2019, 8:38 a.m. | Votes: 0 | [
VOTE ]
Hello @laurose
Welcome to Steemit & Wish you luck - success with Steemit!
Currently, We're supporting for the Planktons by our small upvote. If you follow @haccolong you will get free upvote of 20 users. You may like it, Check statement here.
To get more 15SP delegate + 3000points and receive additional rewards from your activities on Steemit, you can use Partiko app for your phone.
Please ignore this reply if you do not need the above.
Posted using Partiko Android
Et même avec le diagnostic, les preuves ADN, la famille arrive encore à nier...
Là je suis arrivée dans la phase "Vous avez un rhume ? Ah, c'est votre maladie, on ne peut rien faire hein !" Tout est mis sur le dos du SED. Et comme ça ne se soigne pas, mon médecin ne prend plus la peine de chercher quoique ce soit.
"Je fais des malaises. Je suis tombée dans ma cuisine. J'ai vu des étoiles et plus rien, l'instant d'après j'étais à terre" A ça mon médecin traitant ne m'a pas pris ma tension, et m'a conseillé de rester coucher parce qu'il faut dire qu'avec le temps humide ça n'aide pas.
J'ai des problèmes de cœur de base quand même...